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Suzanne, 49

#auguts hard to talk about

I absolutely wear my bikini with pride! My body survived what tried to kill it and that’s great! Nothing can detract from that for me personally.

The moment I was told I’d need a permanent colostomy as part of the treatment for stage 3 bowel cancer, I was in shock. I was truly traumatised by the thought of it. I had a few weeks of chemo and radiotherapy to get through before the operation but still my mind raced at a million miles an hour. All my thoughts were negative. I think back to that time occasionally and wonder if I had been better informed would I have been so horrified?

I didn’t know of anyone with a stoma. I didn’t know what the bag would look like on. I certainly didn’t know how I’d feel.

I was very lucky. When I came round from the operation to remove the tumour and to make the stoma, I felt reset, reinvigorated and almost reinvented.

Maybe it’s because I survived, not just the cancer but the operation too (it’s pretty hard-going). I came round, saw the little red blob of a stoma and thought “I can do this! This is fine!”.

I feel that it’s really important to spread stoma information. My experience has mostly been positive (a few leaks here and there but no more than my very broken bowels before surgery). I really, really like my stoma. I have a colostomy, so I appreciate I am dealing with the easier option.

I feel very grateful to still be alive. I feel elated by it to be honest.

I’ve had 2 negative incidents from strangers on Instagram. That’s it. Two nobodies stating that I shouldn’t be so proud of my body and that it should be covered up, in 12 years of posting positive photos of me loving life. I’ll let you use your imagination on how I dealt with that. But suffice to say I will bikini until I no longer wish to.

I absolutely wear my bikini with pride! Not because I have a great body – I have eyes! But because my body survived what tried to kill it and that’s great! Nothing can detract from that for me personally.

I understand if people don’t feel comfortable in their skin, bagged or not. We’re conditioned that way. But my perfect body isn’t one that looks incredible, it’s one that feels incredible – one that feels happy and confident and at peace.

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Gut health is unique to you, so hear from experts, people with lived experience and the community to find out ways they manage their gut health. Scientists believe that, from birth, the gut microbiome is linked to virtually every aspect of our health. There is still much more to discover but take your first step here.

Michael

I am 71 years old. Diagnosed with Stage 3 rectal adenoma in March 2022. I had chemoradiotherapy and Contact Radiotherapy (Papillon treatment) as due to a rare neurological disorder, which compromises my daily living activities, I did not feel I would cope well with the proposed surgery and permanent stoma.

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Gillian

I had been ignoring an intermittent pain/ache in my left-hand side for over a year. The pain became more permanent and I started to notice my bowel habits change. I was a one time a day in the morning regular as clockwork for all my life. It then went up to 3 times and urgent and painful.

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Angela

My bowel stopped working due to diverticulitis which caused a stricture. My caecum ballooned and this was removed together with 2/3 rds of the colon & a colostomy bag attached for 6 months. This was reversed after 6 months at St Thomas’s Hospital 6 years ago.

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